Tony Ferrandino spoke at the “Spotlight on Batten Disease,” an educational event presented at the CIRM Governing Board Meeting on August 13, 2008. Ferrandino’s son, Drew, was diagnosed with Batten disease in January 2007. Ferrandino spoke about his family’s journey to identify Drew’s condition and to seek out a treatment. Drew is enrolled in a stem cell trial being run by StemCells, Inc.
Mr. Ferrandino was introduced Stephen Huhn, M.D., F.A.C.S., F.A.A.P. Dr. Huhn is Vice President and Head of the Neural Program at Stem Cells, Inc. He is on leave from Stanford University’s School of Medicine, where he is Associate Professor of Neurosurgery and Chief of Pediatric Neurosurgery.