News and Events

Upcoming Events

CIRM board supports a rare disease funding plan, administrative changes January 30, 2026
Written by Holly MacCormick South San Francisco, CA, January 30, 2026 – As many as 1 in 10 people in the U.S. has a rare disease, many of which have no known cure. A new program by the California Institute for Regenerative Medicine (CIRM) could change this by funding novel ways to develop multiple genetic […]
New program to help patients with rare disease January 29, 2026
Recently, the California Institute for Regenerative Medicine (CIRM) announced a new approach for how its funding can advance treatments for people living with rare diseases. Individually, few people have any single rare disease, but in aggregate, about 30 million people in the U.S. have one of the roughly 10,000 rare diseases, and 95% have no […]
Early-stage research could—one day—benefit many people living with genetic diseases December 9, 2025
Written by Holly Alyssa MacCormick Wanting the best for your child is a universal experience, and Audrey Davidow wanted her baby to have a bright future full of possibility. But in March of 2012, her 13-month-old son Calvin was diagnosed with a rare disease called Pitt Hopkins Syndrome, and she was given little hope that […]