Patient Advocates of the ICOC
|
Affiliation
|
| Jonathan Thomas (ex-officio) |
ICOC Chairman |
| David Higgins |
ICOC Patient Advocate - Parkinson's Disease |
| Lauren Miller |
ICOC Patient Advocate - Alzheimer’s Disease |
| Francisco Prieto |
ICOC Patient Advocate - Type I Diabetes |
| Al Rowlett |
ICOC Patient Advocate - Mental Health |
| Jeff Sheehy |
ICOC Patient Advocate - HIV/AIDS |
| Oswald Steward |
ICOC Patient Advocate - Spinal Cord Injury |
| Art Torres |
ICOC Patient Advocate - Alternate |
| Diane Winokur |
ICOC Patient Advocate - ALS and Multiple Sclerosis |
Scientists
|
Affiliation
|
Expertise
|
| Gyula Acsadi |
The Children’s Hospital of Michigan |
Pediatric Neurology; Gene Therapy for Motor Neuron Disease |
| Julie Allickson |
Wake Forest School of Medicine |
Quality Assurance/Control, Regulatory Affairs, Process Development and GMP Manufacturing |
| Brenda Andrews |
University of Toronto |
Genomics; Phenomics: Cell Cycle Regulated Transcription |
| Ali Arbab |
Georgia Health Sciences University |
Imaging; Cell Tracking; Radiology; Oncology |
| Nazem Atassi |
Massachusetts General Hospital |
Translational Research and Clinical trials in Neurodegenerative Disorders |
| Alex Bailey |
REGENXBIO Inc. |
Nonclinical Regulatory; Pharmacology/Toxicology; Cell and Gene Therapy |
| Andrew Baker |
University of Edinburgh |
Cardiovascular Disease; Gene and Cell Therapy |
| Andrew Balber |
Cicada Biopharmaceutical Consulting |
Immunology, Cellular Therapeutics |
| Roger Barker |
University of Cambridge |
Neuroscience; PD; HD; Cell Therapy; Biomarkers, Neurogenesis |
| Julia Barrett |
Biologics Consulting Group, Inc. |
Clinical Consultant; Regulatory |
| Amelia Bartholomew |
University of Illinois-Chicago |
Hematopoietic & Mesenchymal Stem Cells; Transplantation Tolerance; Solid Organ Transplantation |
| Daniel Bauer |
Harvard Medical School |
Pediatric Hematology/Oncology; Therapeutic Genome Editing |
| Bradley Bernstein |
Massachusetts Institute of Technology |
Genomics Approaches to the Study of Chromatin Structure and Cancer |
| Alexey Bersenev |
Yale University |
CAR-T Cell Manufacturing; Hematopoietic Stem Cells; Immunotherapy |
| Mick Bhatia |
McMaster University |
Somatic & Pluripotent Stem Cell Development; Hematopoiesis |
| Lauren Black |
Charles River Laboratory |
Regulatory (Pharmacology / Toxicology) |
| Cesar Borlongan |
University of South Florida |
Cell Therapy for Brain Disorders Including Stroke and Neonatal Ischemic Injury |
| Michael Boulton |
University of Alabama School of Medicine |
Retinal Disease; Stem Cell Biology |
| Kenneth Brayman |
University of Virginia Health System |
Diabetes; Kidney & Islet Transplantation; Peripheral Vascualar Disease |
| Christopher Breuer |
Nationwide Children's Hospital |
Pediatric Surgery; Tissue Engineering; Vascular Biology |
| Vania Broccoli |
San Raffaele Scientific Institute |
Genetics & Neural Stem Cell Fate; Hereditory Neural Syndromes; Neurodevelopment |
| Ulrich Broeckel |
Medical College of Wisconsin |
Genetics & Cardiovascular Disease; Pharmacogenetics; iPSC Modeling |
| Patrik Brundin |
Van Andel Institute |
Neural Transplantation (PD) |
| Jeff Bulte |
John Hopkins University |
Cellular Imaging |
| Jason Burdick |
University of Pennsylvania |
Development of Hydrogels for Biologic Application |
| Joy Cavagnaro |
Access Bio |
Regulatory; Preclinical Development; Cell & Gene Therapy |
| John Centanni |
Neurona Therapeutics |
Clinical Product Development for Cellular Therapeutics |
| Linzhao Cheng |
Johns Hopkins University School of Medicine |
Stem Cell Models for Hematopoiesis and Blood Diseases; Gene Editing |
| Rajesh Chopra |
Institute of Cancer Research and Royal Marsden Hospital |
Oncology; Hematology; Stem Cells; Translational Medicine |
| Jose Cibelli |
Michigan State University |
Cellular Reprogramming; Stem Cell Biology; Pluripotency |
| Francesca Cicchetti |
Université Laval |
Neurodegenerative Disorders; Therapeutic Development; Stem Cell Therapies |
| Diego Correa |
University of Miami |
MSC Biology, Skeletal Joint Diseases, Diabetes |
| Chad Cowan |
Harvard University |
Stem Cell Biology, In vitro Models of Disease |
| Charles Cox, Jr |
University of Texas Medical School at Houston |
Pediatric Trauma; Neurologic Injury; Bio-hybrid Organs; Cardiopulmonary |
| Dennis Crawford |
Oregon Health & Science University |
Orthopedic Surgery; ACL Reconstruction |
| John Crowley |
Fred Hutchinson Cancer Center |
Design & Analysis of Cancer Clinical Trials |
| Linda Custer |
Tarveda Therapeutics |
Clinical Operations |
| Corey Cutler |
Harvard Medical School |
Hematology/Oncology; Cancer Immunology; Stem Cell Transplantation |
| Margot Damaser |
Cleveland Clinic |
Female Pelvic Dysfunction; Urinary & Fecal Incontinence; Pelvic Organ Prolapse |
| Carol Danielson |
Regulatory Advantage, LLC |
Clinical Regulatory; CMC Regulatory; Cell Therapy, Biologics, & Small Molecule Therapeutics |
| Cosimo de Bari |
University of Aberdeen |
Skeletal Repair; Potency Assays; Arthritis |
| Willard Dere |
University of Utah |
Clinical Development; Endocrine, Bone, & General Medicine Research & Development |
| John DiPersio |
Washington University School of Medicine |
Leukemias, Bone Marrow Transplantation |
| Daniel Doherty |
Seattle Children's Hospital |
Developmental Pediatrics; Genetics & Hindbrain Malformations |
| Boro Dropulic |
Lentigen |
Lentiviral Vector Technology; HIV/AIDS |
| Jay Edelberg |
Sanofi-Aventis |
Cardiovascular Disease Therapies, Biomarkers |
| James Ellis |
The Hospital for Sick Children |
Vector Development; Reprogramming; iPSC Banking; Rett Syndrome |
| Alan Flake |
Children's Hospital of Philadelphia |
In utero Cell & Gene Therapy; Pediatric Surgery |
| Thomas Freeman |
University of South Florida |
Neural Transplantation; Spine Surgery |
| Mark Furth |
Fibrolamellar Cancer Foundation |
Fetal & Adult Stem Cells in Regenerative Medicine |
| Glenn Gaudette |
Worcester Polytechnic Institute |
Biomedical Engineering, Cell Therapy, Cardiovascular Disease |
| Adrian Gee |
Baylor College of Medicine |
CMC for Cell and Gene Therapy, HSC, & Blood Bank Standards |
| Bruce Gelb |
Mount Sinai Hospital |
Pediatric Cardiology; Cardiomyopathy; Cardiovascular Genetics: Heart Transplantation |
| Manuela Gernert |
University of Veterinary Medicine Hannover |
Pathophysiology of Epilepsies; Neural Transplantation; Drug Delivery in Epilepsy |
| Richard Gibbs |
Baylor College of Medicine |
Genomics of Cancer, Heart Disease, & Autism |
| Rachel Gibson |
University of Adelaide |
Chemotherapy-Induced Mucositis; Gut Microbiome |
| Jonathan D. Glass |
Emory University |
Neuromuscular Disorders; Peripheral Neuropathies (ALS) |
| May Griffith |
Linkopings University |
Regenerative Medicine; Biomaterials; Eye (Cornea) |
| James Guest |
The Miami Project |
Spinal Cord Injury; Preclinical Animal Modeling |
| Christie Gunter |
HudsonAlpha Institute for Biotechnology |
Human Genetics & Genomics; Fragile X Syndrome |
| Kurt Gunter |
Cell Medica Inc. |
Regulatory Affairs, Therapy Development |
| Timothy Hacker |
University of Wisconsin |
Animal Models of Disease for Preclinical Testing |
| John Hassell |
McMaster University |
Cancer Biology (Breast); Therapeutics; Cell Signaling; Functional Genomics |
| Franz Hefti |
Proclara Biosciences |
Drug Development; Neuroscience (AD) |
| Derek Hei |
BlueRock Therapeutics |
Developing Cell and Gene Therapeutics for Clinical Trials; Cell Manufacturing |
| Shelly Heimfeld |
Fred Hutchinson Cancer Research Center |
Cellular Therapy; Hematology; GMP Cell Production |
| Claire Henchcliffe |
Weill Cornell Medical Center |
Neurodegenerative Disorders (PD); Biomarker Development; Clinical Trial Design |
| Mary Beth Henderson |
RCRI, Inc. |
Medical Device Regulatory and Quality System |
| Anthony Hollander |
University of Bristol |
Chondrogenesis; Osteoarthritis; Tissue Engineering; Trachea Engineering |
| Ole Isacson |
Harvard University |
Neurodegenerative Disease (PD, HD); Neuroregeneration |
| Robin Jenkins |
Sanofi-Aventis |
Medical Affairs; Global Development; Clinical Trial Data Management |
| Jane Johnson |
UT Southwestern |
Neurogenesis; Somatosensory Circuit; Pharmacology; Cancer Biology |
| Sadik Kassim |
Kite Pharmaceuticals |
Cancer Immunotherapy; CAR-T Cell Process Development; AAV Gene Therapy |
| Douglas Kerr |
Generatio Bio |
Neuronal Injury; Motor Neuron Disease; Neurodegeneration |
| Ali Khademhosseini |
Brigham and Women's Hospital |
Nanotechnologies for Controlling Cellular Behavior |
| Daniel Kim |
University of Texas Medical School at Houston |
Neurological Surgery; Spinal Surgery |
| Kathleen Kirby |
Viridian Strategies |
Clinical Operations; Gene Therapy & Biologics; Organ Indications |
| Vassilis Koliatsos |
Johns Hopkins University School of Medicine |
Traumatic & Degenerative Brain Injury and Repair; Alzheimer’s Disease |
| Olle Korsgren |
Uppsala University Hospital |
Islet Allo- & Xenotransplantation; Transplantation Immunology |
| Darrell Kotton |
Boston University |
Stem Cell & Gene Therapy; Lung Developmental Biology; Pulmonary Medicine |
| Paul Kulesa |
Stowers Institute for Medical Research |
Cell Migration, Imaging |
| Andrew Kung |
Columbia University Medical Center |
Tumor/Stem Cell Biology, Clinical Transplantation |
| John Kuo |
The University of Texas at Austin - Dell Medical School |
Neurosurgery; Neuro-oncology; Cancer Stem Cell Biology |
| Daniel Kuritzkes |
Harvard Medical School |
HIV-1 Persistence and Eradication; Resistance to Antiretroviral Drugs; Viral Fitness; Viral Tropism |
| Brian Kwon |
Vancouver General Hospital |
Spinal Cord Injury |
| John Lake |
University of Minnesota |
Liver, Solid Organ Transplantation |
| Joseph Laning |
Astellas Institute for Regenerative Medicine |
Cell Banking; Human Embryonic Stem Cell Banking |
| Jane Larkindale |
NMD Consulting |
Neuromuscular Disease; Patient Outreach; Venture Philanthropy |
| Russell Lonser |
Ohio State University |
Neurosurgery; Drug Delivery; Neural Disorders; Neuro-oncology |
| Christian Lorson |
University of Missouri |
Alternative Splicing; Spinal Muscular Atrophy; Gene Therapy |
| Pradeep Mammen |
University of Texas Southwestern |
Cardiology; Heart Failure/Transplantation; Neuromuscular Cardiomyopathy |
| Robert Marcus |
Independent Consultant |
Clinical & Drug Development in Osteoporosis & Bone Medicine |
| Robert Masson |
NeuroSpine Institute |
Neurosurgery; Bone & Spinal Surgery |
| William Matsui |
UT Austin Dell Medical School |
Regulatory Affairs; Clinical Development Strategy |
| John Mattick |
Garvan Institute of Medical Research |
Genetics & Genomics; Non-coding DNA |
| Margot Mayer-Proschel |
University of Rochester |
Glial Cells in Development, Disease, and Injury Repair |
| Jacob McCauley |
University of Miami |
Genetic Epidemiology; Multiple Sclerosis; Neurodegenerative Disease |
| Samir Mehta |
University of Pennsylvania |
Orthopaedic Trauma; Fractures; Articular Cartilage Injury |
| Alexander Meissner |
Max Planck Institute for Molecular Genetics |
Stem Cell Biology; Epigenetic and Cellular Reprogramming |
| Edmund Mickunas |
Independent Consultant |
Clinical & Regulatory Affairs for Pharmacologics, Biologics, and Medical Devices |
| Stephen Minger |
GE Healthcare Life Sciences |
Stem Cell Biology, Neurobiology; Cell Technologies |
| Shoukrhat Mitalipov |
Oregon Heath & Sciences University |
Gamete, Embryo, & Stem Cell Biology; Pluripotency |
| Bruce Montgomery |
Cardeas Pharma |
Product Development; Respiratory Disease |
| Christine Mummery |
Leiden University Medical Center |
Pluripotency & Differentiation to Cardiovascular Lineages |
| Michael Murphy |
Indiana University School of Medicine |
Vascular Surgery; Stem Cell Therapies for Cardiovascular Disease; Arterial & Aortic Disease |
| Richard Myers |
HudsonAlpha Institute for Biotechnology |
Genomics and Genetics of Human Diseases and Other Traits |
| Ulrik Nielsen |
Independent Consultant |
Cancer Immunotherapy; Adoptive T-Cell Therapy |
| Mark Noble |
University of Rochester |
Regenerative Medicine; Neural Stem Cells; Neurological Disease & Injury |
| Richard Ochoa |
Pre-Clinical Safety, Inc. |
Regulatory Affairs; Pharmacology & Toxicology |
| Maynard Olson |
University of Washington |
Genomics; Natural Variation in DNA Sequence |
| Kelly Otto |
Independent Consultant |
Clinical Drug Development; Clinical Operations |
| Sean Palecek |
University of Wisconsin |
Pluripotency; Tissue Engineering; Biosensors |
| Aarno Palotie |
Institute for Molecular Medicine Finland (FIMM) |
Genetics & the Central Nervous System; Migraines; Epilepsy; Schizophrenia; Autism |
| Nancy Parenteau |
Ingenium BioTherapy Corpporation |
Biotechnology; Biological Products; Drug Development |
| Malin Parmar |
Lund University |
Neurodegeneration & Parkinson’s Disease |
| David Pepperl |
Biologics Consulting |
Regulatory (Pharmacology/Toxicology) |
| Martin Pera |
The Jackson Laboratory |
Pluripotent Stem Cell Biology; Developmental Biology |
| Rita Perlingeiro |
University of Minnesota |
Lineage-Specific Differentiation (Skeletal); Genetic Correction of Disease |
| Michael Pfenning |
Mayo Clinic |
Hospital Operations & Clinical /Translational Research Administration |
| Seth Pollack |
Fred Hutchinson Cancer Research Center |
Oncology; Immunotherapy for Sarcoma; Adoptive T-Cell Therapy |
| Thomas Povsic |
Duke University Medical Center |
Cardiovascular Disease; Cell Therapy; Clinical Trial Design |
| Rajiv Raja |
MedImmune/Astra Zeneca |
Biomarker Development |
| Theodore Rasmussen |
University of Connecticut |
Chromatin Dynamics in Pluripotent Cells |
| Jared Roach |
Institute for Systems Biology |
High Throughput Systems Biology Data; Immunology; Neurodegeneration |
| Allan Robins |
Independent Consultant |
Cell Manufacturing and Process Development; Pluripotent Stem Cells; Cell Therapy Product Development |
| Frank Rockhold |
Duke University |
Biostatistics: Clinical Trial Design: Data Monitoring |
| Barry Rosen |
The Wellcome Trust Sanger Institute |
Mouse Genetics; Genetic Manipulation of ES Cells |
| Theodora Ross |
UT Southwestern |
Hematopoiesis; Leukemia |
| Anne Rosser |
Cardiff University |
CNS Regeneration (HD, PD) |
| Josh Rubin |
Washington University in St. Louis |
Pediatric Brain Tumors; Brain Development Mechanisms & Tumorigenesis |
| Steven Russell |
Massachusetts General Hospital |
Diabetes Research |
| Hesham Sadek |
University of Texas Southwestern Medical Center |
Cardiac & Hematopoietic Stem Cell Biology; Metabolomics; Microenvironment |
| Michel Sadelain |
Memorial Sloan-Kettering Cancer Center |
Gene Therapy; Bone Marrow Transplant; Immunology; Cancer |
| Jacqueline Sagen |
University of Miami |
Neural Transplantation; Axonal Regrowth; Chronic Pain Syndromes |
| Krishanu Saha |
University of Wisconsin-Madison |
Gene Editing, Biomanufacturing, Disease Modeling and Reprogramming |
| Vijay Sankaran |
Harvard Medical School |
Genetic Variation in Hematopoiesis and Blood Diseases |
| John-Michael Sauer |
Critical Path Institute |
Toxicology, Pharmacology, Drug Discovery & Development |
| Hans Scholer |
Max Plank Institute for Molecular Biomedicine |
Stem Cell Pluripotency & Germline Development |
| Brian Schwartz |
ArQule |
Oncology; Drug Development |
| James Schwob |
Tufts University |
Neural Development; Olfactory Projection; Neurogenesis |
| Christopher Scull |
Biologics Consulting |
Design and Management of IND-enabling Studies; Pre-clinical Regulatory Strategy |
| Khalid Shah |
Harvard Medical School |
Neuro-Oncology; Targeted Cancer Therapeutics; Stem Cell Transplantation |
| Warren Sherman |
Columbia Unversity Medical Center |
Cardiology; Cardiac-based Regenerative Medicine & Cellular Therapies |
| Robert Simari |
University of Kansas Medical Center |
Cardiology; Stem Cell & Regenerative Medicine Research |
| Kim Smith-Whitley |
Children’s Hospital of Philadelphia |
Pediatric Hematology; Sickle Cell Disease |
| Clifford Steer |
University of Minnesota |
Hepatology; Gene Therapy; miRNAs as Therapeutic Agents |
| Azim Surani |
Gurdon Institute |
Mammalian Germ Cells; Pluripotency; Epigenesis; Single Cell Technology |
| Viviane Tabar |
Memorial Sloan-Kettering Cancer Center |
Pluripotent & Neural Stem Cell Biology; Neurosurgery; Tumors |
| Alice Tomei |
University of Miami |
Cell and Tissue Engineering, Biomaterials, Type-1 Diabetes, Autoimmunity |
| Jay Traverse |
Minneapolis Heart Institute |
Stem Cell Therapy for Cardiovascular Disease |
| George Truskey |
Duke University |
Cardiovascular Engineering; Tissue Engineering; Stem Cells; Cell Mechanics |
| Stefan Tullius |
Brigham and Women’s Hospital |
Kidney/Pancreas Transplant Surgery; Transplantation Immunology |
| Ludovic Vallier |
University of Cambridge |
Pluripotent Stem Cell Biology; Endoderm; iPSC Modeling of Liver & Metabolic Disease |
| Richard Wade-Martins |
University of Oxford |
Molecular Mechanisms of Neurodegeneration; Gene Therapy |
| Herman Waldmann |
University of Oxford |
Transplantation Tolerance; Therapeutic use of Monoclonal Antibodies |
| Gordon Weir |
Joslin Diabetes Center |
Diabetes, Islet-cell Transplantation |
| Mitch Weiss |
St. Jude Children's Research Hospital |
Hematology; Genome Editing; Developmental Hematopoiesis |
| Barbara White |
Corbus Pharmaceuticals, Inc. |
Inflammatory and Autoimmune Disease, Rheumatology, Respiratory, and Dermatology |
| Theresa Whiteside |
University of Pittsburgh Cancer Institute |
Cancer Immunology and Immunotherapy, Cellular Therapy, Immunopathology |
| Scott Whittemore |
University of Louisville |
Spinal Cord Injury |
| Tom WIlkie |
UT Southwestern Medical Center |
Pancreatic Diseases, Diabetes, Stem Cell Transplantation and Cancer |
| Grant Williams |
Williams Cancer Drug Consulting, LLC |
Drug Development; Clinical Regulatory |
| Michelle LeRoux Williams |
Aziyo Biologics |
Drug & Product Development; Regulatory Affairs; Clinical Regulatory |
| Barbara Wirostko |
University of Utah |
Ophthalmology; Clinical Development |
| Cassian Yee |
University of Texas MD Anderson Cancer Center |
Medical Oncology; Immunology |
| Marco Zarbin |
New Jersey Medical School |
Opthamology; Cell Therapy |
| Wolfram-Hubertus Zimmerman |
University Medical Center Göttingen |
Cardiovascular Regenerative Medicine & Tissue Engineering |
| Juan Carlos Zúñiga-Pflücker |
University of Toronto |
Developmental Immunology, T-cells, Hematopoietic Stem Cells |
| Thomas Zwaka |
Mount Sinai School of Medicine |
Stem Cell Biology, Molecular Genetics |
